Episode 47 - Michael Tan and Dr. Jennifer Miller - Comprehensive Nutrition Management in Prader-Willi Syndrome

In this episode of Nutrition Pearls: the Podcast, co-hosts Bailey Koch and Nikki Misner speak with Michael Tan and Dr. Jennifer Miller about optimizing nutrition care in Prader-Willi syndrome from infancy to adolescence.

Michael is a Registered Dietitian and Certified Diabetes Educator in the Division of Pediatric Endocrinology at the University of Florida College of Medicine. He specializes in the nutritional management of Prader-Willi Syndrome, pediatric obesity, and also works with those with type 1 and type 2 diabetes. Dr. Jennifer Miller is Professor in the Division of Pediatric Endocrinology at the University of Florida. Dr. Miller has worked with individuals with hypothalamic causes of obesity for over 20 years and has spent her career working to understand the etiology of hyperphagia and find possible treatments for individuals with Prader-Willi syndrome, hypothalamic obesity, and Schaff-Yang Syndrome. She currently follows over 600 patients with Prader-Willi syndrome from around the world. Dr. Miller’s research efforts are focused on developing clinical treatment trials for individuals of all ages with hypothalamic obesity. Together they have worked with families of children with Prader-Willi Syndrome since 2018.

Nutrition Pearls is supported by an educational grant from Mead Johnson Nutrition.

References:

Miller JL, Lynn CH, Driscoll DC, et al. Nutritional phases in Prader-Willi syndrome. Am J Med Genet A. 2011;155A(5):1040-1049. doi:10.1002/ajmg.a.33951

Miller JL, Tan M. Dietary Management for Adolescents with Prader-Willi Syndrome. Adolesc Health Med Ther. 2020;11:113-118. Published 2020 Aug 25. doi:10.2147/AHMT.S214893

Produced by: Corey Irwin

NASPGHAN - Council for Pediatric Nutrition Professionals

cpnp@naspghan.org

Episode 46 - Bonus Episode - Season 3 Send-Off

In this episode of Nutrition Pearls: the Podcast, all the hosts join to reflect on the third year of Nutrition Pearls: the Podcast and discuss what is to come in season 4!

Nutrition Pearls is supported by an educational grant from Mead Johnson Nutrition.

Produced by: Corey Irwin

NASPGHAN - Council for Pediatric Nutrition Professionals

cpnp@naspghan.org

Episode 45 - Sarah Vermilyea - Nutrition in Children with Complex Health History

In this episode of Nutrition Pearls: the Podcast, co-hosts Jen Smith and Megan Murphy speak with Sarah Vermilyea MS, RD, CSP, LD, CNSC on the topic of nutrition in children with complex health history. Sarah is a pediatric dietitian with 20 years of experience. Over her career she has practiced across numerous pediatric specialty areas, most often in the PICU and its counterpart, outpatient complex care. She currently works at a pediatric intermediate care facility, providing nutrition care to both children and adults with complex medical needs.

Of particular interest to this podcast, Sarah was an inaugural NASPGHAN CPNP board member and the original organizer of the Nutrition Pearls YouTube series; serving CPNP members for more than 7 years.

Sarah has authored two book chapters on pediatric nutrition assessment—including NFPE for children with medical complexity—and has 12 publications in peer-reviewed journals. For the past two years, she has traveled to pediatric hospitals across the United States to train dietitians in performing NFPE on infants.

She serves as a preceptor for clinical and community nutrition interns from the University of Cincinnati, recently receiving their Outstanding Preceptor Award. Sarah is currently engaged in an exciting international collaboration with clinicians caring for children with neurological impairment.

Nutrition Pearls is supported by an educational grant from Mead Johnson Nutrition.

Resources:

Catastrophic Rupture – Orange Hat Publishing

‘How to SGNA’ by Donna Secker:

Secker DJ, Jeejeebhoy KN. How to perform Subjective Global Nutritional assessment in children. J Acad Nutr Diet. 2012 Mar;112(3):424-431.e6. doi: 10.1016/j.jada.2011.08.039. Epub 2012 Mar 1. PMID: 22717202.

‘Updated SGNA’ template by Laura Carter:

Carter L, Hulst JM, Afzal N, Jeejeebhoy K, Brunet-Wood K. Update to the pediatric Subjective Global Nutritional Assessment (SGNA). Nutr Clin Pract. 2022 Dec;37(6):1448-1457. doi: 10.1002/ncp.10859. Epub 2022 May 20. PMID: 35594373.

Produced by: Corey Irwin

NASPGHAN - Council for Pediatric Nutrition Professionals

cpnp@naspghan.org