Multiple Sclerosis

My Story My Struggle

By: Joyce Edwards Lee, Richard Edwards

Narrated by: Janice Kirkel

As two siblings, we were walking toward the light. In our mind's eye, it shined brightly, that green light of hope, as multiple sclerosis greatly impacted our lives. We accepted help along the way but not as a sign of defeat. A disabled person is seen as a burden and unfortunately is treated as such. The world doesn't have the patience or understanding of the tremendous struggle one bears living in a world not meant for frailty. This has been a journey of many decades. MS can lead to other health challenges that are formidable in and of themselves, like JC virus or PML. Did you know that there are no reports of patients that survived the diagnosis of PML beyond two years? What will be the outcome? We have wandered too long in darkness, seeking the light. Therefore, this is a postmortem on the struggle as we mourned the loss of health, livelihood, and family relationships that were compromised due to multiple sclerosis. We look back in wonder at the magnificent aspects of our lives and celebrate the good times.

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