The Long COVID Survival Guide

How to Take Care of Yourself and What Comes Next Stories and Advice from Twenty Long-Haulers and Experts

By: Fiona Lowenstein - editor, Dr. Akiko Iwasaki - afterword

Narrated by: Lisa Reneé Pitts, Sara Sheckells

The first patient-to-patient guide for people living with Long COVID—with expert advice and an afterword by the leading research scientist

For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers.

A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors—from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists—share their stories and insight on topics including: getting diagnosed; finding a caregiver; confronting medical racism and gaslighting; navigating employment issues; dealing with fatigue and brain fog; caring for your mental health; and more.

This vital resource provides the answers and reassurance you need, to live with and heal from Long COVID.

©2022 Fiona Lowenstein (P)2023 Tantor

This book made me feel less alone

This book was so wonderful and gave so much insight into long covid. It gave me a sense of community and made me feel less alone in my own experiences with long covid. I loved the narrators and it was a great listen. I love how personal this book was and I would highly recommend it to everyone!

Extremely validating book

This book helped me immensely. I've been struggling with Long Covid since early August 2023 and it has gotten worse lately. This book, largely written from the experiences of other sufferers, explained the symptoms and offered practical advice that truly helps. It made me feel less alone and offered communication access to others in a network I plan to begin participation with soon. Everyone that experienced the pandemic understands the isolation we all experienced, whether we caught the disease or not. But having it last well beyond that initial time gives new meaning to the term "isolation" that most won't appreciate without a Guide like this one. The"long" version is truly an "invisible" disease for those still experiencing it. We're still struggling out of sight in our homes, many permanently disabled, feeling forgotten. I highly recommend this book for those having this condition, those that care for them and anyone having someone in their life still suffering. Don't forget about us, we need you now more than ever.