159: Do Hard Things: Movement is Medicine & Riding to Raise Awareness about Early Onset FSHD with George Pollock & Ally Roets

In this episode, we have two return guests: George Pollock, Team FSHD Cycling, and Ally Roets, Parents’ Roundtable Leadership. George and Ally join Tim to discuss their participation in the upcoming Tour de Tuscon, a world-class cycling race, and their work to raise awareness about and funds for Early Onset FSHD research & treatment access. While Ally covers the importance of Early Onset specific research and funding, Geroge discusses the mindset and intentional training behind his training. Living with FSHD is like competing in an endurance event: it takes mindset, training, nutrition and hydration, consistency, support, and rest.

As George says: Movement is medicine, you have to do hard things.

Learn more about Early Onset FSHD: https://www.fshdsociety.org/early-onset-fshd/

Help George, Ally, and the rest of our riders reach their goal of raising $30,000 to support Early Onset FSHD research, support & treatments.
Ally’s Page: https://www.eltourtucson.org/earlyonsetfshd
George’s Page: https://www.eltourtucson.org/fshdcyclist
Tom’s Page: https://www.eltourtucson.org/Race/80091/Donate/fSbhnc05DGgxWHeq

This episode contains a video created by Sam Ray. You can view the original video on Youtube: https://youtu.be/PydgQ7C7F08?si=juUA7u1L9VBMmB74

No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.

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