Lived Experience & Alzheimer’s Care

In this Alzheimer’s Awareness Month episode of GeriEvidence, Dr. Alexandra Papaioannou is joined by Phyllis Fehr and Adam Morrison for a conversation that brings lived experience andsystem leadership together. Drawing on Phyllis’s journey with young-onset Alzheimer’s disease and Adam’s work shaping dementia policy and supports, the episode explores early signs, delays in diagnosis, dignity in everyday life, and what must change so people receive support when it truly matters.

This episode is proudly supported by the CIHR Institute of Aging and the Betty Havens Prize for Knowledge Mobilization in Aging, awarded to Dr. Alexandra Papaioannou. Special thanks to the creative directors, Dr. Patricia Hewston and Caroline Marr, and strategic director, Dr. Tricia Woo.

Resources

Find your local Alzheimer Society: https://alzheimer.ca/on/en/about-us/find-your-local-alzheimer-society

Alzheimer Society of Canada: ⁠https://alzheimer.ca/en⁠

Alzheimer Society of Ontario: ⁠https://alzheimer.ca/on/en⁠

Cognitive Groove: https://www.gerascentre.ca/our-research/cognitivegroove/

iGeriCare:⁠⁠https://igericare.healthhq.ca/en⁠⁠

The Lancet: ⁠https://www.thelancet.com/infographics-do/dementia-risk

Helping children understand Alzheimer’s Disease: ⁠https://alzheimer.ca/en/help-support/i-have-friend-or-family-member-who-lives-dementia/helping-children-understand-dementia⁠

Ongoing Brain Health Research: https://www.gerascentre.ca/brain-health/

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