When Appointments Become the Illness: When To Say When

Living with a chronic illness or disability, it’s difficult to know when to stop chasing doctor appointments, medications, and possible fixes, and instead start living life. For a long time after my stroke, I searched for the next solution, better specialists, drugs and treatments that might finally change what was happening to me. I found the most frustrating part was that no one ever said, “There’s nothing more I can do, it’s ok to just go live now.” I had to come to the realization myself that it was time to accept the unexplained and adapt my life. I now keep regular check-ins with doctors, but I stopped letting my calendar and my hope be run by constant appointments and recovering from therapies that weren’t helping me.

Choosing to step back from treatment was the beginning of living again. I decided that my limited energy was better spent adapting my life to having a disability than endlessly chasing relief that wasn’t coming. That shift helped me feel more in charge of my own recovery. If you are at that point, wondering whether it’s okay to stop and just live the best way you can, only you can answer that. No doctor will make that decision for you, nor should they. Whatever choice you make from that place will be the right choice for you.

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